To be an effective advocate for your child, you need a system for tracking documents and information. Some parents use a notebook or binder with dividers to organize papers. Others prefer a filing system in a drawer or box. Here is a list of the kinds of information to gather and record:

• Medical information: Include your child's diagnosis, history, immunization records, medications, surgical records, etc. Note what to do in a medical emergency and share this information with your child's sitter, teacher, or others.
• Hospital/clinic records and reports: You should ask for and keep every piece of paper produced about your child by the hospital, clinic, or other health providers. It is your right to have copies of these medical records.
• Personal notes and observations: Take your own notes every time you talk to your child's doctor, nurse, or other providers. Don't forget to record milestones and achievements.
• Insurance information: What does your child's health plan cover? How does it work? Ask for and keep any brochures, booklets or documents that explain the insurance plan.
• Assistance programs: Keep up with information about helpful programs for which your child is eligible.
• School records: This includes report cards, your child's Individualized Family Service Plan (IFSP) or Individualized Education Program (IEP), any notes from school, and your notes.
• Child care/after school/summer programs: Are there program guidelines or rules? Keep these and any notes created.
• Telephone contact notes: Make notes of phone calls you make or receive about your child.
• Correspondence: Keep a copy any time you receive or write a letter to your child's doctor, insurance company, teacher, etc.
• Expense logs, travel logs, and receipts: Keep up with this information for tax and insurance reimbursement purposes.
• Meetings and conferences: You never know when a brochure, a presentation handout, or your notes might come in handy!

from The Family Voices Leadership Handbook